About this Site

LivingwithLEMS.org is a site for all Lambert-Eaton Myasthenic Syndrome (LEMS) patients, caregivers and family members that offers information, resources and support. The goals of this site are to build connections and offer resources and support to help LEMS patients become informed advocates for themselves and their disease.

Because LEMS patients do not have a dedicated patient advocacy organization presently, Global Genes™, a leading rare disease nonprofit advocacy organization dedicated to eliminating the challenges of rare disease, powers this website.

Global Genes is able to produce this site with an unrestricted educational grant from Catalyst Pharmaceuticals.

For more information, please contact Carrie Ostrea, Senior Manager, Patient Advocacy, Global Genes.