Hello, my name is Sarah Shell.
I am 21 years old and I was diagnosed with the congenital form of Lambert Eaton Myasthenic Syndrome when I was 18.
I first got sick when I was a sophomore in high school. I had lost 23 pounds and started showing weird neurologic symptoms. For example, my eyes stopped tracking left and right, I couldn't swallow well, and I began to pass out frequently. I was passed along from specialist to specialist so they could rule out the things in their specialty field. I heard everything from brain tumor, cancer, untreatable autoimmune diseases, and rare fatal genetic diseases. I went on the journey of specialists for about three years. I've been to Birmingham, New Orleans, and Atlanta. READ MORE.