Patient Support Meetings

One of the most powerful things a patient in the rare disease community can do is to connect with other patients, families and caregivers who understand exactly what you are going through. These personal connections can be a source of support and information as you navigate new territory with a rare disease diagnosis.

If you are interested in learning more about upcoming patient meetings where you will learn about LEMS from an expert physician, become better informed about living with chronic disease, and discuss the value of building community please email Carrie Ostrea, Senior Manager, Advocacy, Global Genes and visit the LEMS Meetups page to learn about upcoming dates and venues.

LEMS Community

Patients and caregivers gather in Los Angeles, California to meet with physicians who treat LEMS and to learn more about the support available for the LEMS patient community.