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February 2016
Romy Braunstein’s LEMS Journey

Romy Braunstein’s LEMS Journey

In 2000, my health was deteriorating. I was twelve months post herniated (L3,L4) back surgery and assumed something did not go right with the procedure. I visited the surgeon a few months later and read him my list of symptoms: chronic fatigue, muscle weakness, droopy face, slurred speech, bad balance, and unexplained falling. He said that the procedure went as expected and these symptoms had nothing to do with the surgery. He then referred me to a Neurologist in another department.
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Help others learn about Lambert-Eaton Myasthenic Syndrome (LEMS) by sharing your story. Your personal journey will help inspire and connect other LEMS patients and inform rare disease stakeholders and the public about this rare, autoimmune disease. Raising awareness through story-telling is an effective way to advocate! Email Global Genes to learn more.