Upcoming Events



Global Genes, a leading advocacy organization whose mission is to CONNECT, EMPOWER and INSPIRE the rare disease community is proud to host the 2018 LEMS Community Development Workshop.  This workshop is open to all LEMS patients and caregivers who are interested in learning more about community development and advocacy. Global Genes will facilitate an open dialogue to determine the interests and needs of the LEMS patient community and explore various avenues to address identified needs.


To further the workshop’s goals, Global Genes is excited to collaborate with the Myasthenia Gravis Foundation of America.  Workshop attendees will also have the opportunity to participate in the MGFA National Conference.  The National MG Conference is the largest gathering of the MG Community in the U.S. More than 200 participants will gather to learn, share and socialize with others who understand.


Intercontinental Kansas City at the Plaza
401 Ward Parkway
Kansas City, MO 64112


Agenda Overview


Saturday, April 14, 2018

  • 2:00 PM to 7:00 PM - LEMS Community Workshop Program

Sunday, April 15, 2018

  • 8:00 AM to 1:00 PM - LEMS Community Workshop Program

  • 2:00 PM to 5:00 PM - MGFA National Conference

Monday, April 16, 2018

  • 8:00 AM to 5:00 PM - MGFA National Conference

Tuesday, April 17, 2018

  • Optional MGFA National Conference


We will be accepting applications for this educational and networking opportunity through March 15, 2018.  


You can apply by clicking HERE.  Space is limited so apply today!


*All travel, meals and accommodations will be included.


For more information or questions, please contact Amy Grover, Senior Manager of Patient Engagement at amyg@globalgenes.org or 949-248-7273 x103.